Talking in borrowed words

Don’t don’t don’t. Don’t have music playing in the background when you have a speech delayed child is just one more don’t I had to learn. It makes it extra difficult for them to focus on the speech around them; harder to differentiate the separate sounds against the background noise; the wall of noise inhibiting them from attempting to talk. Don’t.

But what is music? Before X-factor, before Sony, before disco it was (it is) a way of communicating. Stories and emotions. Bob Dylan is a Nobel laureate; music communicates language and poetry too.

I did comply. I tried to not let her lose a moment of language learning opportunities. But her language was delayed already and I couldn’t suppress the strain in my voice as the hours rolled through with me providing both sides of the conversation. A little bit like our relationship with technology, I rethought the issue. Listened to the risks but also watched her interactions to identify the benefits.

Echolalia – echo speech – is a natural stage of language acquisition. Some children pass through it quickly, others echo much more. Junior echoed. It was subtle – she didn’t echo immediately, but rather replayed them in some future instance, like a human voice recorder. A vaguely context appropriate utterance above her normal language level, replayed verbatim including any regional accent present.

So in the end I’ve found music is a friend for my little Echo nymph. Not too much. Not all the time. Not indiscriminately. I built a playlist on Spotify. To make the cut, the songs had to appeal to a child, but also lift my spirits. Clear articulation of words without speaking down to the listener. A good beat. No nursery rhymes.

The music brought in a second voice. And then a third voice joined in. A little third voice yowling in the chorus without knowing the lyrics. A week later, in the shop, I got a little tug on my sleeve. It wasn’t to tell me “I want water”. It wasn’t to say “Go home”. I got two serious grey-green eyes focused straight on me to say “You stole my heart”.

Little girl, you stole my heart and made it your own.


Teaching my son to deflect uncomfortable personal questions

I’ve met the headteacher this week, dealing with an incident which started with my eleven year old son sharing some private information with a close friend, and snowballed into him being the subject of hot gossip and persistent, intrusive questions.

School have thankfully promised to clamp down hard. They told me to keep him home this morning while they spoke firmly to all of the children about what had happened. I wanted to use this time to teach my son some strategies to protect himself from these kinds of things. He wasn’t at fault, but sadly this is likely to happen again and again – with potentially more serious consequences as he gets older. With his tendency to be quirky and trusting, he’s an easy target.

I looked around for decent resources that he could connect with – a lot of what was there (understandably) focussed on schools reducing bullying, rather than bullyproofing kids. Other resources were just a bit too mature. What connected was How to avoid answering personal questions . It links with a current special interest in the house – being legal TV dramas. It’s always a win when you can connect learning to their special interest!

Here’s a potted summary of what we learned:

  • Spot “information hounds”. We discussed how he’d experienced examples of manipulation, psychological tricks and shock tactics to encourage him to share more than he was comfortable with.
  • The power of the pause to engage your lawyer brain:
  1. who might be harmed by this information
  2. Who might benefit
  3. How can this information be used
  4. Why do they want to know
  5. Do I need to answer
  • How to deflect. There are lots of suggestions on the list. The five that my son thought he might actually use were:
  1. “Wow, you do ask a lot of personal questions, don’t you??”
  2. “No, I won’t answer that” (or the softer “that’s private”)
  3. Blink and totally blank the question
  4. Answer ambiguously and immediately change the subject
  5. Redirect to a subject you feel more comfortable discussing.

Overall I think he’s learnt a lesson about telling an adult much earlier when things are going wrong. He kept thinking it would go away if he answered the questions, and instead it just made it a bigger and bigger story.

Can anyone recommend any other resources to protect aspie kids from being socially manipulated like this? Or give me any tips what worked for them! I’m so sad for the poor chap.

AspieTeen viewing list

So today England is snowed in. Me and my wonderful teen daughter on the sofa together under the duvet. This is the YouTube list I compiled for us to watch together.

We understand her diagnosis – so I was looking for videos that would discuss the less obvious aspects of autism – rather than just ‘basic introductions’.

Here is my list Videos for my Aspie Teen Girls . Some very appealing VLoggers as well as some for ‘sciency’ ones.

What have I missed?

How to keep listening (even when they go on and on)

Super-listening is one the many superpowers I’ve been expected to develop as a parent of autistic kids.

This blog is about my baby who didn’t talk. I have other babies that did. And, oh my goodness, they talk. Easily thirty minutes without pausing on whatever is their ‘thing’ at the current time. Briefly throwing out a question like ” who is your favourite Pokemon” to check you’re listening, and then monologue again. Here are my top tips for how I surf it:

  • Whenever they get a new craze, invest twenty minutes to read a wiki on it this means that you can bring in a little bit of reciprocal conversation on the topic they’re interested in, to model good conversation skills. Also means that you can quickly come up with plausible answers to pop quiz questions, even if you tuned out.
  • Make listening face and noise It doesn’t actually matter if your attention wanders. I find that they don’t expect much of you beyond a chance to unspool their mental narrative
  • Mirror their reactions. Laugh when they do even if you lost track of the joke. Look concerned when they look concerned. It’s about nurturing joint attention and emotional connection – rather than the facts.
  • Give them thirty minutes to talk about their thing, and then insert the question you really want the answer to. For example “why were you upset after school yesterday”. The pay off for an hour of listening to Pokemon is that once they’re talking about one thing, they’ll be on a talking roll sometimes.
  • Take them with you when you have driving errands primetalkingtime without eating into your free time.
  • Enjoy the fact that they want to bring you into their world. It’s a compliment. And it’s setting up the idea that you care about their ‘stuff’.

Buddying up siblings

I suppress a hollow laugh when the speech therapist tells me that ‘just ten minutes a day practice’ will easily fit into my day. Which spare ten minutes is this?

It’s never just about finding ten minutes in our household. It’s about finding ten minutes to work with just one child, while the other children are safely contained on another activity. An activity that is interesting enough to keep them out of our hair while we practice, but not so interesting that the ‘target child’ becomes jealous and uncooperative.

My answer to this is to involve the siblings. The easiest person to do this with is Squids younger sister – baby Squid. Baby Squid’s speech is great – and she loves to drill flash cards with Squid – despite the 3 year age gap. Squids eldest brother is a terrible loser. He was the ‘buddy’ when Squids speech homework was turntaking games. Finally Squid is a buddy herself. Her creative and crafty streak keeping her other brother company on fine motor skills work.

I want to teach my kids that families should be about supporting each other. Not walking our paths alone.

And the look that you gave me made me shiver

Cos you never used to look at me that way. And I thought. Maybe I should walk right up to you and say: “It’s a game we like to play”?

Look into her angel eyes. One look and you’re hypnotised. She who must take your heart and you must pay the price.

Look into her angel eyes. You’ll remember when they were paradise. But now it wears a disguise.

Don’t look too deep into those angel eyes.

Now I’m lonely I sit and think about her, and it hurts to remember all the good times

And I wonder does it have to be this way? When I see you, can I take away all the pain?

Look into those angel eyes.

She said she was sick. I said she wasn’t. We both cried. I’m sitting in a corner on my own feeling like I let her down. Two miles away, she probably agrees.

Angel Eyes

It’s depressing when no one understands you.

This article describes what I instinctively feel.

Autistic people’s rate of depression is strongly linked to acceptance/non-acceptance by their family and social circle.

And masking might help with daily functioning, but comes with a mental health cost.

Basically – we’re not intrinsically broken. We’re just breakable if we’re barraged with enough negative feedback about ourselves…. You know, like any other human….