The 14 year old ‘baby’. Thought it would be funny to sneak away the cake and pretend to eat it all by herself. Her 11 year old brother was outraged at her breach of party etiquette. Screamed a sonic boom to stop time; chased her down; pummelled her; cried. That’s how we were discovered by the first arriving wave of pink taffeta-wrapped six year old princess guests. The three of us locked with mutual submission restraints on the front lawn. Two out of three crying; two out of three shouting.
The party before that we were the guests. The same five minutes of utter madness at the start. This time the 14 year old went into the host’s garden and pelted her brother painfully with tennis balls. Her 11 year old brother was outraged at her breach of party etiquette. Screamed a sonic boom to stop time; chased her down; pummelled her; cried.
The party before that she didn’t go. Apparently she ‘always spoils everything anyway’. The thing is though, she doesn’t. Once settled, she’s fine, they’re fine. Help with the younger children, generally stay out of the way, make a fair effort at ‘manners’. The damage is often done, however, in that first 5 minutes. They’re on show to people who don’t know them well, and they show wild and anti-social behaviour.
We need a better script to start parties. My research resources linked below. I’ll report back how we progress.
Websites with party tips appropriate for ASD teenagers
“Nana’s not going to be coming any more. Not for a long while. She needs special medicine which will make her ill. She can’t travel. ”
He stood there and nodded rhythmically. Tell-tale frozen face. I know it to mean that in his head the cogs are spinning. Translating to understand what he has actually been told. Processing onwards to work out what his reaction is supposed to be. Scanning the input for meaningful ‘trigger words’; searching the memory banks for examples of ‘expected behaviour’ in this situation.
She waved goodbye, wiped away a tear and was gone. He turned 180 degrees and went upstairs. Lay on his bed. Cried wordlessly for two hours.
When he spoke, he repeated the last words she’d said to him. Repeated and repeated and repeated. For hours. The words were meant as a reassurance; a tenet for courage; telling him to not be afraid. In my son’s mouth, every repetition was nuanced different. Stress the first word; stress the middle syllable of the last word; add a pause before the last word. Every possible reading of those words. Each inflexion with a slightly altered meaning. I knew this, because on the second round of this he added comments to himself. Which version said ‘do not be afraid’ which version said ‘be afraid’. Trying to capture every drop. Parsing out the codex from these verbal glyphs for how he should be to support his grandmother.
So today England is snowed in. Me and my wonderful teen daughter on the sofa together under the duvet. This is the YouTube list I compiled for us to watch together.
We understand her diagnosis – so I was looking for videos that would discuss the less obvious aspects of autism – rather than just ‘basic introductions’.
Here is my list Videos for my Aspie Teen Girls . Some very appealing VLoggers as well as some for ‘sciency’ ones.
What have I missed?
Super-listening is one the many superpowers I’ve been expected to develop as a parent of autistic kids.
This blog is about my baby who didn’t talk. I have other babies that did. And, oh my goodness, they talk. Easily thirty minutes without pausing on whatever is their ‘thing’ at the current time. Briefly throwing out a question like ” who is your favourite Pokemon” to check you’re listening, and then monologue again. Here are my top tips for how I surf it:
- Whenever they get a new craze, invest twenty minutes to read a wiki on it this means that you can bring in a little bit of reciprocal conversation on the topic they’re interested in, to model good conversation skills. Also means that you can quickly come up with plausible answers to pop quiz questions, even if you tuned out.
- Make listening face and noise It doesn’t actually matter if your attention wanders. I find that they don’t expect much of you beyond a chance to unspool their mental narrative
- Mirror their reactions. Laugh when they do even if you lost track of the joke. Look concerned when they look concerned. It’s about nurturing joint attention and emotional connection – rather than the facts.
- Give them thirty minutes to talk about their thing, and then insert the question you really want the answer to. For example “why were you upset after school yesterday”. The pay off for an hour of listening to Pokemon is that once they’re talking about one thing, they’ll be on a talking roll sometimes.
- Take them with you when you have driving errands primetalkingtime without eating into your free time.
- Enjoy the fact that they want to bring you into their world. It’s a compliment. And it’s setting up the idea that you care about their ‘stuff’.
I suppress a hollow laugh when the speech therapist tells me that ‘just ten minutes a day practice’ will easily fit into my day. Which spare ten minutes is this?
It’s never just about finding ten minutes in our household. It’s about finding ten minutes to work with just one child, while the other children are safely contained on another activity. An activity that is interesting enough to keep them out of our hair while we practice, but not so interesting that the ‘target child’ becomes jealous and uncooperative.
My answer to this is to involve the siblings. The easiest person to do this with is Squids younger sister – baby Squid. Baby Squid’s speech is great – and she loves to drill flash cards with Squid – despite the 3 year age gap. Squids eldest brother is a terrible loser. He was the ‘buddy’ when Squids speech homework was turntaking games. Finally Squid is a buddy herself. Her creative and crafty streak keeping her other brother company on fine motor skills work.
I want to teach my kids that families should be about supporting each other. Not walking our paths alone.
Cos you never used to look at me that way. And I thought. Maybe I should walk right up to you and say: “It’s a game we like to play”?
Look into her angel eyes. One look and you’re hypnotised. She who must take your heart and you must pay the price.
Look into her angel eyes. You’ll remember when they were paradise. But now it wears a disguise.
Don’t look too deep into those angel eyes.
Now I’m lonely I sit and think about her, and it hurts to remember all the good times
And I wonder does it have to be this way? When I see you, can I take away all the pain?
Look into those angel eyes.
She said she was sick. I said she wasn’t. We both cried. I’m sitting in a corner on my own feeling like I let her down. Two miles away, she probably agrees.
Our family now numbers a girl-who-is-a-boy; a child who is in therapy to stop mixing up ‘he’ and ‘she’; and, a boy in a dress.
This gorgeous gender neutral clothing by Little Bird in Mothercare – I can’t tell you how much I love it!
(NB totally not a sponsored post btw! I genuinely find this range so refreshing)
This article describes what I instinctively feel.
Autistic people’s rate of depression is strongly linked to acceptance/non-acceptance by their family and social circle.
And masking might help with daily functioning, but comes with a mental health cost.
Basically – we’re not intrinsically broken. We’re just breakable if we’re barraged with enough negative feedback about ourselves…. You know, like any other human….