The 14 year old ‘baby’. Thought it would be funny to sneak away the cake and pretend to eat it all by herself. Her 11 year old brother was outraged at her breach of party etiquette. Screamed a sonic boom to stop time; chased her down; pummelled her; cried. That’s how we were discovered by the first arriving wave of pink taffeta-wrapped six year old princess guests. The three of us locked with mutual submission restraints on the front lawn. Two out of three crying; two out of three shouting.
The party before that we were the guests. The same five minutes of utter madness at the start. This time the 14 year old went into the host’s garden and pelted her brother painfully with tennis balls. Her 11 year old brother was outraged at her breach of party etiquette. Screamed a sonic boom to stop time; chased her down; pummelled her; cried.
The party before that she didn’t go. Apparently she ‘always spoils everything anyway’. The thing is though, she doesn’t. Once settled, she’s fine, they’re fine. Help with the younger children, generally stay out of the way, make a fair effort at ‘manners’. The damage is often done, however, in that first 5 minutes. They’re on show to people who don’t know them well, and they show wild and anti-social behaviour.
We need a better script to start parties. My research resources linked below. I’ll report back how we progress.
Websites with party tips appropriate for ASD teenagers
“Nana’s not going to be coming any more. Not for a long while. She needs special medicine which will make her ill. She can’t travel. ”
He stood there and nodded rhythmically. Tell-tale frozen face. I know it to mean that in his head the cogs are spinning. Translating to understand what he has actually been told. Processing onwards to work out what his reaction is supposed to be. Scanning the input for meaningful ‘trigger words’; searching the memory banks for examples of ‘expected behaviour’ in this situation.
She waved goodbye, wiped away a tear and was gone. He turned 180 degrees and went upstairs. Lay on his bed. Cried wordlessly for two hours.
When he spoke, he repeated the last words she’d said to him. Repeated and repeated and repeated. For hours. The words were meant as a reassurance; a tenet for courage; telling him to not be afraid. In my son’s mouth, every repetition was nuanced different. Stress the first word; stress the middle syllable of the last word; add a pause before the last word. Every possible reading of those words. Each inflexion with a slightly altered meaning. I knew this, because on the second round of this he added comments to himself. Which version said ‘do not be afraid’ which version said ‘be afraid’. Trying to capture every drop. Parsing out the codex from these verbal glyphs for how he should be to support his grandmother.
Super-listening is one the many superpowers I’ve been expected to develop as a parent of autistic kids.
This blog is about my baby who didn’t talk. I have other babies that did. And, oh my goodness, they talk. Easily thirty minutes without pausing on whatever is their ‘thing’ at the current time. Briefly throwing out a question like ” who is your favourite Pokemon” to check you’re listening, and then monologue again. Here are my top tips for how I surf it:
- Whenever they get a new craze, invest twenty minutes to read a wiki on it this means that you can bring in a little bit of reciprocal conversation on the topic they’re interested in, to model good conversation skills. Also means that you can quickly come up with plausible answers to pop quiz questions, even if you tuned out.
- Make listening face and noise It doesn’t actually matter if your attention wanders. I find that they don’t expect much of you beyond a chance to unspool their mental narrative
- Mirror their reactions. Laugh when they do even if you lost track of the joke. Look concerned when they look concerned. It’s about nurturing joint attention and emotional connection – rather than the facts.
- Give them thirty minutes to talk about their thing, and then insert the question you really want the answer to. For example “why were you upset after school yesterday”. The pay off for an hour of listening to Pokemon is that once they’re talking about one thing, they’ll be on a talking roll sometimes.
- Take them with you when you have driving errands primetalkingtime without eating into your free time.
- Enjoy the fact that they want to bring you into their world. It’s a compliment. And it’s setting up the idea that you care about their ‘stuff’.
In Russia, where I grew up, mathematicians were celebrated. Chess was taken seriously. People were uniformly obsessed with the common cultural rituals, like the morning gymnastics, like every meal starting with soup and proceeding to potatoes.
The man-child – overachieving in his field but apparently unable to demonstrate even the most basic self-care competency – was common.
Is there such a thing as an autistic culture – where the neurotypicals feel subfunctional?
“Ugly mug “
“Poo poo Troll Face”
I’d been ignoring the rising volume on the back seat while navigating tricky motorway traffic, but it really wasn’t getting better. Time for parenting.
“Don’t call your brother Fatso”
“He called me Troll Face”
“Don’t call your brother Troll Face”
“Trolls are beautiful creatures. What have you got against trolls??”
“That’s not what he meant. Muuuuum. And why is he…”
Not winning really. I turned the music up extremely loud, drove them home in enforced silence and sat them down to write essays.
One was titled: “Calling my brother an Ugly Mug: What did I expect would happen? What did happen. How did he feel? How did you feel?” . It was returned saying “I expected him to stop namecalling. He called me a troll. We are now both angry”.
The other one was titled: “Calling my brother Idiot: What did I expect would happen? What did happen. How did he feel? How did you feel?”. It was returned with two A4 sides of grievances about sibling alliances and lack of appreciation for efforts made for other people.
Wish me luck sorting that out.
Funeral Etiqutte on What to Do:
1. Go. Attend the funeral in person. Miss weddings and baby showers if you must but attend the funerals. People never forget that you attended a funeral and you will bring them comfort and care even if you stay a little while.
2. Wear strictly black
3. Express your sincere condolences directly to the immediate family.
4. Share a story or a memory with the close family. You will be adding to their treasure “box” of memories.
5. Be on your best behavior. Take along your best manners of greeting and conversing.
6. Contribute to the charity or foundation of their wishes or else take flowers. The amount does not matter. It matters that you do not show up empty-handed.
7. Follow the wishes and traditions of the family. I am not religious but for weddings and funerals of those that I care about, I would gladly spend any necessary time in their house of worship.
8. Perform any favors that is asked of you, be it to sing, to read a poem, to fulfill any other action to fulfill their wishes.
Funeral Etiqutte on What Not to Do:
1. Wear flip-flops.
2. Bring up sensitive issues
3. Laugh unnecessarily loud or God forbid, tell jokes.
4. Discuss your body aches and pains
5. Draw attention to yourself. Change the conversation if you must, especially when you don’t want the attention.
6. Say much if you have nothing useful to say. Words, once outside the mouth, cannot be taken back.
Adapted from Prolific Living
This is the list that I edited for my autistic teenager. I find it works best if I explain behaviour expectations very clearly, particularly given that funerals are formal and don't happen very often.
She seemed to appreciate the list and coped well with the day. In hindsight, I would have maybe built in a break and a recap of the rules half way through the day. Right after the service, the body language became more dramatic, and we sat in the car for half an hour so as to not be a distraction while people grieved.
The instruction that she found the hardest was to share a story about the deceased. She just did not feel confident in being able to judge the correct tone. She chose to just be largely silent for the entire afternoon, which was fine.
Squid’s Dad found this excellent little activity book – which had a helpful page with each pony’s special friendship skills. She doesn’t know any of those words – but she knows all those ponies – so it was a nice hook to chat about what makes a good friend.
The great thing about doing ‘social skills’ through the ponies is that it is one step removed. There is no personal judgement of her or her behaviour – she can be the external observer with a birds-eye unemotive view of the ponies. And I’m hoping the theoretical lessons will translate into practical friendship skills. And the darn blighters are so cute it was a nice rainy-day activity in any case.